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Thanks for this web page. I'm 43 and have been dsap since about 40...my dad had it, my mom tells me, have had many dermatologists, some smart enough to diagnose correctly, but not really cure. Did nitrogen freezing; didn't really cure it, did laser, dozens of spots, but that doesn't really cure it; it seems to get rid of the ridges/lesion border, but left similarly visible spots which can flare up when exposed to too much sun -- the monster that won't die... Tazorac burned; stay away... nothing really cures it except avoiding too much sun (which enflames it) I never had any itching some of you speak of... best advice I can give: I used some artificial tanning lotion (good stuff) to make my arms a little darker... made me way less self-concious... Hoping for a cure down the road... will keep reading this sight

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I am a 60 year old man diagnosed with DSAP about 15 years ago. I also have celiac disease, a genetic condition related to gluten intolerance. I wonder if anyone else has the same two genetic problems and if there is any connection?

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I have just been diagnosed (July of 2002). Doctor identified it 1st visit, though it is mild at this point. I am 38 yrs. Will contact if any treatment brings positive results

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Do any of you that have Porpkeratosis take antihistamines ,antibiotics, NSAIDS,or have psoriasis? I am doing a survey it would be very helpful for just a quick yes or no response. thankyou in advance for your help.

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In the next couple of days I will be moving www.DSAP.net to a real server so this guestbook can show all of the responses on one big page. Please check back!

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In the next couple of days I will be moving www.DSAP.net to a real server so this guestbook can show all of the responses on one big page. Please check back!

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Hi, I just found this site and am very excited. 4 different dermatologists have given me 4 different diagnosis. The last said He thought i had some kind of skin lupus. My Mom has this disorder as well as I. She says hers are spreading and she thinks it is by scratching them. That last Dr. said that when the spots are red that means the disorder is active. Sound right to you?

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How many of you have taken medicines that were over the counter or perscription that had photosensitivity as a possible side effect? I am doing a survey as porokeratosis ( DSAP) has been linked to photosensitivity of drugs. Please note that not all medicines will list this side effect. Please ,please take a moment to email if you ever had sun sensivity to any medication at all. We can make a difference,if we try. Thankyou in advance.

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I have tried 8 different dermatologists. I just recently have been diagnosed with Porokeratosis. It is a relief to know other people suffer this embrassement. I can't wear half of my wardrobe anymore. I'm just very glad it didn't get too bad untill I was older. I am 57 now and still can't adjust. I keep thinking it will go away. I now no it is not going to. Your website has helped me adjust to the fact that other women feel the same way. I just tried Tazorac and I don't reccommend it. It has been burning since I applied it. Thank you so much for your information. I now know I must learn to live with this and not have false hope. I will keep an eye on your website for any future information. Thanks again, Sincerely, Helene Nastro